![]() ![]() The Project ALS research advisory board, which gathers preeminent neurologists and neuroscientists across academia and industry, evaluates that progress regularly. Project ALS requires that its funded researchers communicate regularly, share data openly, meet project milestones, and submit progress reports twice annually. Project ALS-funded doctors and researchers were required to work together in small teams, toward a new standard of results-oriented accountability. They founded Project ALS as a non-profit 501(c)3 in 1998, and set forth a new paradigm for ALS research. Jenifer, her friends and family, set out to change that–and make a difference in the lives of people diagnosed with ALS. Her doctor told her to “max out her credit cards and eat junk food.” At that time, ALS doctors and scientists worked mostly in isolation, with little support. In 1998, Jenifer Estess, a thirty-five year old New York theater and film producer, was diagnosed with ALS. ![]()
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